A Day In The Life Of A Child With Cerebral Palsy
Whether your child is at school, at home, or just out having fun, living with cerebral palsy will significantly change the way they grow and develop, on a daily basis.
Getting Your Child to School
Getting children ready in the morning can be difficult, if your child has a disability, whether physical or otherwise, it can make the process take much longer. Most people with a disabled child will have developed a routine to start their day. If you have more than one child, you may find it harder to stick to this routine without any additional help.
Having a proper care plan in place, whether it is for 24 hours or just the morning, could make a huge difference.
Your local authority can help a great deal in providing you with extra care for your child. You can contact them for a care needs assessment to determine exactly what kind of help you may need. The type of help available could include a carer who comes to help your child get ready in the morning, or adapted transport to take them to and from school in the week.
The local council often pays for this transport so it shouldn't cost you anything but it could give you the breathing space you need to help your morning run a little more smoothly.
Making Your Home Comfortable
Being comfortable at home is something every child should be entitled to feel. For a child with cerebral palsy, their home may be the only place that can cater exactly to their individual needs.
Mobility can be an issue throughout the day and depending on the severity and the limbs affected the amount of help needed will differ from child to child. You may have gone through the process of adapting your home by installing a shower room and/or wheelchair ramps if your child requires them. This can be something your local authority can help with by providing a Disabled Facilities Grant, but often the price of these adjustments are much more than families can afford. As a rule, the level of adaptation will ultimately dictate the price.
In the meantime, you can buy equipment for your child whilst they're at home, but these additional aids can be costly when grouped together. Stationary bathing seats are within an affordable range whilst electronic bath seats can run into the thousands. Rails added to the sides of beds, grabbers and walkers are all useful tools, but when added together it can be quite costly.
Getting Out and About with the Kids
Getting out of the house is something all kids love, especially on the weekends when attention spans run short. Restaurants, swimming pools and going out to the cinema as a family can all become challenges if you don't bring along the right tools.
Obtaining seats where a wheelchair can fit, accessible swimming pools and cinema's that are disability friendly are all considerations that you as a parent will have to take into account, but are out of your control. What you can control, is the additional aids you may bring along to make your child's time at these places as enjoyable and accessible as possible.
Having a disability doesn't mean your child can't lead the same quality of life as their friends do. Reasonable adjustments can be made given the correct resources, but funding these may be where things become complicated.
One thing is clear, compensation, care packages, and your child's needs go hand in hand
. Finding someone who understands that and can help you express it clearly is a key part through the journey.