Help and Advice with Education and Schooling Requirements for Children with Cystic Fibrosis
If your child has been diagnosed with cystic fibrosis, you probably have a lot of concerns and questions about their needs and their education.
We offer a complete service where we work with schools, the local authority, and specialists to provide the proper support for your family.
What is cystic fibrosis?
Cystic fibrosis is a genetic disorder which mainly affects the lungs and digestive system. The hallmark of cystic fibrosis is the clogging of these organs
with a thick sticky mucus.
What difficulties might my child have?
The symptoms of cystic fibrosis differ from person to person. However, common problems are:
Heavy coughing and wheezing, because the body is trying to cough the mucus up
Shortness of breath
Frequent chest and lung infections, which may recur, because bacteria develop in the mucus
Difficulty gaining and maintain weight
Risk of diabetes in later life
What educational support might my child need?
It is important to keep the school in the loop with your child's diagnosis. There are several things to keep in mind which will improve your child’s health,
and their quality of education:
- Sports and physical education should be encouraged, rather than avoided. Physical activities can help with problems caused by the mucus
Make them aware of any dietary requirements your child may have, such as digestive supplements or meals that are high in calories and protein
Because of the risk of infections, the school need to consider the risk on school trips of your child catching an infection
The school needs to be made aware that your child will cough frequently, they may need extra toilet breaks compared to other children and may often be
absent for medical treatment and illness
How can we help a child with cystic fibrosis?
Some children need a statement of special educational needs (SEN) to protect their interests. We have extensive experience in working with families to
secure an effective statement, and ensuring that it is followed.
The process of getting a statement can often be long and difficult. If the local authority refuse to give your child an assessment, the process could be
stopped then. However, we are able to appeal on your behalf if they refuse to assess your child.
Chambers and Partners 2017
"Stellar education team representing private and legal aid clients in a range of complex issues. Particularly well known for its expertise in assisting young adults with learning difficulties, admissions and exclusions and judicial review cases."
"Angela Jackman is an erudite education and community care lawyer with a focus on complex SEN matters. Sources say: 'Her judgement really stands out and she has great depth of experience.'"
"Head of department Imogen Jolley has a strong track record handling admissions and exclusions appeals on behalf of parents. She is described by commentators as 'very accessible, knowledgeable and easy to work with.'"
"Dan Rosenberg is praised for 'his impressive knowledge, technical nous and personability.' He is particularly adept in complex judicial review proceedings involving the provision of education to children and young people."
Find out more
Contact us now to discuss how we can help you by completing our, no obligation, online enquiry form and we will call you back or you can call us on freephone: 0808 129 3320.